Our mission is to improve the quality of life for underprivileged children who suffer from various severe skin diseases, particularly Epidermolysis Bullosa (EB). As a nonprofit organization, we allocate 100% of our proceeds towards medication, surgery/treatment, and educational materials for clinicians and families of patients in order to provide a better understanding of the patient’s disease. With help from our donors, we strive to better the lives of these children by alleviating their pain and suffering.

Epidermolysis Bullosa (EB): EB currently has no cure. However, with your help, children suffering from EB can receive the necessary medical attention they need to decrease the severity of their symptoms. Donate today to improve the quality of life for these children!

WHAT IS EB?

Epidermolysis Bullosa (EB) is a genetic skin disorder causing blistering of the whole body. The condition is debilitating to those who suffer from it, making it hard to engage in even the smallest day-to-day tasks. Currently there is no cure for the disease, but with the help of our contributors, we can help to mitigate the pain and suffering of these children and extend their quality of life.

GET TO KNOW THE CHILDREN

If you would like to see the cases before you help, please see our gallery of pictures and our short documentary on EB children. The documentary was filmed in Iran and depicts the daily struggles of children with EB. These struggles are not only due to the disease these children face, but to the financial struggle of the families who are unable to get sufficient treatment for their children. We hope their strength and endurance will capture your heart and motivate you to join in on our quest to improve the lives of these children.

GET INVOLVED

Donations can be made through paypal by donating here or in the form of checks/cash mailed directly to Heal. After a donation is received, donors will receive an email confirmation from our foundation, in which a receipt is given. This receipt can be used towards a tax deduction If you are an amazon.com shopper, great! A percentage of your purchase will go towards our organization. Simply shop on smile.amazon.com and scroll down to “Or pick your own charitable organization”. Type in “Heal Child Skin Disease Foundation” and start shopping!

WHO ARE WE

The Heal Child Skin Disease Foundation is a federally-approved 501(c)3 non profit organization, seeking to directly help children with any type of severe skin disease. Our current focus is on children with Epidermolysis Bullosa (EB). At Heal, we aim to help those families who are of a lower socioeconomic status, and in lesser developed communities. We are dedicated to making sure that EB children receive the necessary treatment they deserve.

EB Short Documentary